I've been meaning to tell you guys about Rafaella (Rafi) who is patient #8 in the stem cell bone marrow transplants. She is two and a half and has Recessive Dystrophic Epidermolysis Bullosa. She is ten days post transplant, and is in the roughest stage of things right now. Please be in prayer for sweet Rafi.
You can follow her journey here. Click on "Daily Updates" for the latest news.
According to Rafi's site, Patient #9, McKensie, will be checking into the BMT floor on March 12th. It is an exciting (but terrifying) time in the EB World.
Please be in prayer for Rafi, McKensie, and also for Sam, who is still struggling.
************************************
Toes look good today! Praise God!!!
