Crazy after-nap hair from yesterday.
"Excuse me, Mom. I need to make a call."
"DADDY! Guess what? I have cuh-RAZY hair!"
(I don't place him in front of this door for the light, by the way. This is seriously his favorite spot in the house, and he crawls there and spends 20 minutes at a time playing and looking out the glass door. But the lighting is really good too... an extra perk!)
Jonah stood up on his own for the first time today. He's stood up by pushing up on something low (namely us when we're lying on the floor next to him), but today he pulled up to something higher. He's still not really using his hands to do it, but hey, it's a start. BIG BOY.
He was very happy about it, as you can clearly see.
And then he needed to take a rest and chill on his wobble penguin. All that standing up was hard work.
And I just thought this one was cute.
Speaking of cute, Courtney posted some ADORABLE videos of Tripp today. You can see them here, but I'm going to share this one, because you will be a better person for having seen it. Warning: your heart may just explode from the cuteness.
And something completely random - I love this blog. Katherine linked to it on her blog earlier in the week. It's a lady who dresses up her baby and creates scenes around her while she sleeps and then photographs her "day dreams." I know that sounds a little strange, but it really is amazing. Here's one of my favorites.
Oh my word. You should definitely stop by. There are tons of other cute ones.
And in the news today -
A USA Today article on the BMT transplants HERE.
And a publication of the results HERE, in the New England Journal of Medicine.
(Thanks to those of you who sent them to me.)
(Thanks to those of you who sent them to me.)
Hopefully all of this being publicized will get more interest and funding. It's an exciting, yet terrifying, time for the EB community. Thank God for doctors and researchers who care enough to look for cures for the most rare diseases. Our kids need help too.
