Matt's parents came into town Sunday through Tuesday, we went to Shaina's choral concert on Monday night, and went to a Bible Study/Christmas party tonight. It's been a good week, but we've mostly been staying at home during the day. It's been so cold and wrestling a thickly wrapped EB kid in and out of a coat is a pain in the you-know-what.
Things are good. Jonah is stable. Life is stable. We are happy. Thank you so much for your continued prayers and love. I know Jonah and all the other EB Sweeties you pray for are so thankful.
Please keep Charlie in your prayers. He will soon begin the bone marrow transplant. We've lost four out of fourteen of our babies, but several of the survivors are showing great improvement. It's a scary but exciting road. You can follow his site HERE and it will always be on my right sidebar. I hope you got to watch the TLC special last night or have plans to watch it in the future. It was really amazing.
Please remember who we're fighting for, and if you are considering end of the year donations, please consider DebRA or EBMRF.
