I've been meaning to get this up all weekend. I wanted to let you guys know that the EB Community has suffered another huge loss. Sweet Baby Elle went to be with Jesus this past Thursday evening. She was an 11 month old with Junctional-Herlitz EB who was undergoing the Bone Marrow Transplant. She passed away at Day +43. Please visit her blog HERE to read her story and offer her parents messages of love and hope. And please donate and raise awareness as you are called and able. We are so desperate for a cure.
