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Also, please go HERE to vote for EBMRF to receive funding for more research. A Facebook/EB friend of mine is participating in her office's Holiday Gives program where people vote on one of five charities to receive funding. They do this instead of sending out client gifts. I think that is so cool. Jonah is the featured EB Cutie, but sweet Aubrey Joy, who recently passed away at the age of six weeks from JEB, is the baby we're honoring. :)
