Saturday, December 12, 2009

christmas decorations and an update

Jonah hanging the first ornament, his very first Hallmark ornament.



The finished tree.


Our JC Penny stockings.


The living room. I definitely would have liked the wrapped pictures better if I had solid paper and nicer bows, but I think the whole point is saving money and doing it with what you have. It took me a while to get used to it, but now I think I like it. Again, thanks for the great idea!


The outside of our house during the daytime. I did this last Sunday afternoon/evening and I about freezed my tooshy off. It was not fun. Stupid half-burnt out lights. It took about three times longer than it should have, and it was well after dark before I finished.

At night.


Baby Jonah on his Christmas blanket from Aunt Katherine.


***********************************
Things are not good here. Jonah held down five ounces overnight, but threw up his 9 am feeding. We called the doctor and she said to just give him a couple ounces of Pedialyte every hour and then to try a bottle again at 4 pm. We did and after about three ounces, he threw up again. He threw up again about thirty minutes ago when we gave him his Carafate and Prevacid. He handled the Pedialyte okay, but he's having trouble with anything else. And I feel like we need to keep trying because he's acting hungry. He definitely has an appetite. I just made him a seven ounce bottle and switched to soy formula, but still added an ounce of Pediasure and the rice cereal. I don't think it will make a difference, but Matt's feeding him now. Hopefully because he just threw up when we gave him the meds he can hold it down... although my guess is that he'll throw up at the beginning of his overnight feeding. It seems he either throws up at the middle or end of one feeding or at the very beginning of the next. And when I say "throws up," I mean everything in his stomach. He just continues to gag and heave until he's cleaned out. It's breaking my heart, and I know he's starving.

I have no idea what's causing this, but it's not good. Obviously we are worried about many things, our biggest concerns being that he's losing much-needed calories, dehydration if he keeps this up (EB babies can get dehydrated VERY quickly), and damage/blistering to his esophagus. My guess is that if things don't drastically improve tomorrow, we will be seeing the pediatrician and/or his GI doctor on Monday. He already has a barium swallow scheduled for January 6th (which was scheduled before all this gushing started), but we may have to move it up to see about what may be causing this and what damage he's doing.

On top of all that, it just sucks to be cleaning puke off the carpet/hardwood floors/furniture all day and doing several partial bandage changes in addition to our full one in the morning. I can't speak for Matt, but I am completely exhausted, irritated, ticked off, leaning toward depressed. This is completely frustrating. We had to cancel plans to go to our Sunday School class party tonight and won't be attempting church in the morning. Once again, we're homebound. Terrific.
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