Our EB friend, Leah, is in the hospital. She stopped eating on Christmas day, and it appears as though she will be getting a g-tube very soon. Please be in prayer for her (and her family), as any procedure is complicated for an EB baby. Thankfully, she will not have to be intubated, since she already has a trach, but there is still danger for infection and complication.
You can follow Leah's blog here. She is just a few weeks older than Jonah and also has Junctional EB.
