I made it to Whole Foods today. I asked the lady if they were always that busy in the middle of the day on a Monday, and she said that they were always busy and that it wasn't actually very busy compared to what it sometimes is. Maybe the aisles are narrow? Or the carts are especially big? Or the store is small? I don't know, but it seemed crowded to me. For some reason it made me kind of happy that all those people were trying to eat healthy or organic. Ever since I read this post by Lauren, I have wanted to buy hormone free meat. That thing about the chickens' poor little bones really got to me. I'm no food fanatic by any means, but man, thinking about those chickens has about converted me for good. I know they say "ignorance is bliss," and in some things I probably agree, but I'm definitely wanting to educate myself more about what I'm eating. I'm working up my courage to actually see Food Inc., because I know once I see it, there will be no turning back. And it sucks that you have to pay a butt load to eat decent food. Messed up, I tell ya. Messed up.
I can't wait til Spring when the farmers are all back out at the Farmer's Market. We live within ten minutes of it, and I know Jonah will LOVE strolling around there. And did you know that they have HUGE, beautiful bouquets of flowers for just $10? And they're way prettier than what you can get at the florist. If any boys read this blog (ahem, Matt), take the hint. Girls like pretty flowers... especially pretty flowers that are cheap.
I got a new phone today. Actually, Matt got us new phones today. He's been wanting a touch screen phone for a while now, and Verizon had a really good deal on the Droid Eris. So anyway, new phones. I keep calling the wrong people and have yet to figure out how to find my call history, but I'm sure it will get easier. And don't be expecting a text message from me anytime soon. I'm all thumbs.
And now, what you are all really here for - Jonah was in a pretty good mood most of the day. He enjoyed being out and about this afternoon. And he played a little bette on his own than he has been. I think his favorite toy is the little basketball goal Aunt Sarah got him for Christmas... or maybe it's just that it's just the right height and shape for him to be able to play with on his own. Many of his toys are either too tall or too wide (won't fit between his legs) for him to sit and play with by himself. Anyway, it's nice that he has at least one "action" toy that he can explore a little on his own. He had two gushers today. He puked up his entire 4:30 bottle, but, no worries, I thought, that will just mean he'll be hungry for solids. And he was. So I fed him some vanilla yogurt and a little chicken/sweet potatoes. I then let him try a bite of chocolate pudding, and that made him puke up everything. Again. I'm in a funk tonight because of it. I thought we were out of the woods with all of that. I mean, a couple nights ago when he started again, I thought it was just because we had put the protein in his bottles. But alas, it seems it may be more than that (although I definitely think putting the protein in there is a spew trigger too).
He's slept the past three nights in a row. Will he go for a fourth? I don't think he's ever gone four in a row before.
And I've been meaning to post this for a while, but it's mostly for my EB Peeps so feel free to stop reading here lest I bore you to death. We've gotten the results back for the first two tiers of Jonah's genetic testing. The first tier was to test for the JEB "hot spots" and looked for abnormalities in (on?) lam A3, lam B3, and lam C2. All normal. Tier two was a complete gene analysis of lam B3. Nothing. So then one of the "experts" at the gene testing place wanted to know more about his biopsy results / talk to the geneticist at Baptist etc before proceeding with further testing. So we released those to her, and we've all decided to continue with the normal sequence of testing. He's most certainly JEB (both of his biopsies confirmed this). The next tier, which they've just started, is a complete analysis of lam C2. If they don't find anything, the next will be a complete analysis of collagen 17 (which I think would be best case scenario as it would mean a milder case???). Anyway, the first two tiers of testing are where 70% of JEB kids usually have their mutations/abnormalities. So EB is super rare (we were told eight in a million although I've seen different figures), and JEB is 10% of that (.5 in a million), and Jonah is in the 30th percentile (or less!) of that. I don't even know what that makes him, and I'm just too tired for math. So anyway that's where we stand on that. I'm not really sure what all this will tell us, but at the least, we will already have it all figured out if we ever get to bone marrow transplant (or other treatment) time. And maybe it will tell us more about the severity of his particular case and/or prognosis? I'm just not sure.
Alright, that's it for me tonight. Sorry for no pictures again. Hopefully tomorrow.
